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Malaysian Node of the Human Variome Project

2025

MalayMail | Thursday, 11 Sep 2025

Malaysia’s path to becoming Asean’s hub for rare disease healthcare — Spinal Muscular Atrophy Malaysia

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2024

MyHVP Newsletter: Volume 9 | December 2024

MyHVP Newsletter is issued biannually. The information in this newsletter is provided by the Malaysian Node of the Human Variome Project (MyHVP) members including South-east Asian Node (HVPSEA Node) for educational / information purpose only.

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Article: Global Globin Network and adopting genomic variant database requirements for thalassemia

A journal article titled "Global Globin Network and Adopting Genomic Variant Database Requirements for Thalassemia" has been published. It highlights the global burden of thalassemia, particularly in LMICs within the thalassemia belt, and proposes minimum genomic database requirements to improve disease management and prevention, guided by HVP standards.

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2023

MyHVP Newsletter: Volume 8: No. 2 | December 2023

MyHVP Newsletter is issued biannually. The information in this newsletter is provided by the Malaysian Node of the Human Variome Project (MyHVP) members including South-east Asian Node (HVPSEA Node) for educational / information purpose only.

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Buletin TV3 | Penyakit Jarang Jumpa: Mampu ragut nyawa, sebabkan ketidakupayaan kronik

KUALA LUMPUR: Nisbahnya, kurang dari satu dalam empat ribu individu dari jumlah populasi penduduk. Itu definisi yang telah dikeluarkan Kementerian Kesihatan Malaysia (KKM) mengenai penyakit jarang jumpa (PJJ).

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The Petri Dish: UNESCO appoints local expert to lead in genetic research on thalassaemia

A LOCAL medical genetics expert has been appointed as UNESCO's first chair in human genetics research on Thalassaemia. Prof Dr Zilfalil Alwi, a senior consultant paediatrician and clinical geneticist from the Human Genome Centre, Universiti Sains Malaysia (USM), is the appointed expert.

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Utusan Malaysia: UNESCO lantik Zilfalil sebagai pengerusi bidang genetik manusia

PETALING JAYA: Pertubuhan Pendidikan, Sains dan Kebudayaan Pertubuhan Bangsa bangsa Bersatu (UNESCO) melantik Profesor Dr. Zilfalil Alwi daripada Pusat Genom Manusia, Universiti Sains Malaysia (USM) sebagai pengerusi dalam bidang genetik manusia bermula 2022 hingga 2026.

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2022

MyHVP Newsletter: Volume 7: No. 1| June & December 2022

MyHVP Newsletter is issued biannually. The information in this newsletter is provided by the Malaysian Node of the Human Variome Project (MyHVP) members including South-east Asian Node (HVPSEA Node) for educational / information purpose only.

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Online News: Give Due Attention to Rare Disease

LETTER: Rare Disease Day, which takes place every Feb 28, or 29 in leap years, seeks to raise awareness among people and also improve access to treatment and medical representations for those with rare diseases and their families.

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Article: Global Globin Network Consensus Paper: Classification and Stratified Roadmaps for Improved Thalassaemia Care and Prevention in 32 Countries

A journal article entitled "Global Globin Network (GGN) Consensus Paper: Classification and Stratified Roadmaps for Improved Thalassaemia Care and Prevention in 32 Countries" has been published in the Journal of Personalized Medicine. This article describes the stratified roadmap established by GGN (formerly known as GG2020), for the improvement of thalassemia care and prevention and is written by members of GGN.

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Report: Accelerating Access to Genomics for Global Health

Promotion, implementation, collaboration, and ethical, legal, and social issues.
A report of the WHO Science Council

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2021

MyHVP Newsletter: Volume 6: First Issue| Jan-July 2021

MyHVP Newsletter is issued biannually. The information in this newsletter is provided by the Malaysian Node of the Human Variome Project (MyHVP) members including South-east Asian Node (HVPSEA Node) for educational / information purpose only.

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MyHVP Newsletter: Volume 6: Second Issue| December 2021

MyHVP Newsletter is issued biannually. The information in this newsletter is provided by the Malaysian Node of the Human Variome Project (MyHVP) members including South-east Asian Node (HVPSEA Node) for educational / information purpose only.

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2020

MyHVP Newsletter: Volume 5: First Issue| June 2020

MyHVP Newsletter is issued biannually. The information in this newsletter is provided by the Malaysian Node of the Human Variome Project (MyHVP) members including South-east Asian Node (HVPSEA Node) for educational / information purpose only.

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MyHVP Newsletter: Volume 5: Second Issue| December 2020

MyHVP Newsletter is issued biannually. The information in this newsletter is provided by the Malaysian Node of the Human Variome Project (MyHVP) members including South-east Asian Node (HVPSEA Node) for educational / information purpose only.

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COVID-19 and SARS-CoV-2: A Virus of Sexism?

An editorial on COVID-19 and SARS-CoV-2 has been published in Malaysian Journal of Human Genetics, the official journal of MyHVP and Malaysian Society of Human Genetics (MSHG).

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2017

MyHVP Newsletter: Volume 4: First Issue| June 2017

The newsletter contents are Message from the Head of MyHVP, Reports on The Human Genome Meeting 2017, Column When a Geneticist Writes Column, Edu-Variome Report, HVP-SEA Node Report, postgraduate report and Photo Gallery.

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2016

MyHVP Newsletter: Volume 3: First Issue| June 2016

The newsletter contents are Message from the Head of MyHVP, Reports on Biennial Meeting of HVP, Column When a Geneticist Writes Column, Edu-Variome Report, SEAHVP Report, postgraduate report and Calendar of Events.

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MyHVP Newsletter: Volume 3: Second Issue| December 2016

The newsletter contents are Message from the Head of MyHVP, Reports on 3 Month Sabbatical, Column When a Geneticist Writes Column,Edu-Variome Report, HVP-SEA Node Report, postgraduate report and Calendar of Events.

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2015

MyHVP Newsletter: Volume 4: Fourth Issue| June 2015

The newsletter contents are Message from the Head of MyHVP, Reports on The Human Genome Meeting 2015, Column When a Geneticist Writes Column,Edu-Variome Report, HVP-SEA Node Report, postgraduate report and Photo Gallery.

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Malay Version [Majalah Kosmik - Bil. 02 2015]: Genetik Mengkaji Keturunan Manusia

This article is in Malay.
The study of human genetics is commonly done in West. DNA is the chemical that stores the genetic information of the heredity of the inherited from the parents from one generation to another.

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2014

MyHVP Newsletter: Volume 3: Third Issue| Dec 2014

The newsletter contents are Message from the Head of MyHVP, Reports on 3 Month Sabbatical, Column When a Geneticist Writes Column,Edu-Variome Report, HVP-SEA Node Report, postgraduate report and Calendar of Events.

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MyHVP Newsletter: Volume 2: Second Issue| May 2014

The newsletter contents are Message from the Head of MyHVP, Reports on Biennial Meeting of HVP, Column When a Geneticist Writes Column, Edu-Variome Report, SEAHVP Report, postgraduate report and Calendar of Events.

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2011

1st Malaysia Conference On Rare Disorder & Medical Genetics Conference 2011, Poster

The genome wide mapping of Malays ethnic groups for the creation of genetic database will provide the genetic map of the country migration history and uncover the extent of genetic similarity between the various populations along with the study of common diseases in the Malaysian populations.

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HUGO 2011 Dubai, Poster

The results have provided information on the genetic differentiation between the sub ethnic groups and valuable insight into the origin of the Malay sub ethnic groups in peninsular Malaysia.

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The Star: Tuesday 12 April 2011: It's all in the genes

The column entitled "It's all in Genes" introduce people to 1Malaysia Human Genome Variation Consortium (1MHGVC).

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2010

Human Variome Project Launching Of It's Malaysian Node: Toward A New Horizon Of Genetics In Malaysia.

The Malaysian node of HVP is represented by the 1MalaysiaHuman Genome Variation Consortium (1Mhgvc) which is headed by Associate Prof. Dr. Zilfalil Bin Alwi.The launching of the Malaysian node of the Human Variome Projectwas held on Oct 9th, 2010 at the Medical Faculty of Universiti Putra Malaysia.

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Malay Version [Majalah Millenium- 2010, November]: Meramal Penyakit Yang Akan Datang

The article is in Malay.
Aiming to give nasianol database containing digital data about the size and shape of the body where technology design genotype data can be associated with Malaysians' SNP genotypes.

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